This is me and an amazing boy named Sam Berns. He make look a little  different but he is just as normal as everyone else. He was diagnosed  with Progeria when he was really little. They also called it old man’s  disease. He has extremely weak bones, little hair and thin skin. The  doctors told him he would probably live til he was 13 years old. Ever  since that day his parents have been working to find a cure for his  disease. Both doctors dedicating their lives to their son. Now, 14 years  old, Sam is still alive and doing great. We weren’t close until last  year and his thirteenth birthday came around and I felt so sick inside;  wondering. And then I thought about what it would be like to be  him…Living day by day wondering when you might not wake up. This scares  me so much to think that Sammy has a chance of never getting his license  and never going to college and having children. As the days pass by my  fears grow and I continuously imagine life as Sam Berns. This little boy  helped me discover that you can’t take life for granted. So every time I  say I’m having a bad hair day I think of him wishing so badly he  actually had hair. I never want him to leave. I’l miss him so much…And  his life will end before it even starts.

This is me and an amazing boy named Sam Berns. He make look a little different but he is just as normal as everyone else. He was diagnosed with Progeria when he was really little. They also called it old man’s disease. He has extremely weak bones, little hair and thin skin. The doctors told him he would probably live til he was 13 years old. Ever since that day his parents have been working to find a cure for his disease. Both doctors dedicating their lives to their son. Now, 14 years old, Sam is still alive and doing great. We weren’t close until last year and his thirteenth birthday came around and I felt so sick inside; wondering. And then I thought about what it would be like to be him…Living day by day wondering when you might not wake up. This scares me so much to think that Sammy has a chance of never getting his license and never going to college and having children. As the days pass by my fears grow and I continuously imagine life as Sam Berns. This little boy helped me discover that you can’t take life for granted. So every time I say I’m having a bad hair day I think of him wishing so badly he actually had hair. I never want him to leave. I’l miss him so much…And his life will end before it even starts.

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  1. fairyytalesarefullofshitt reblogged this from lesliespontaneouspompa and added:
    Can’t believe this was four years ago. Sam just passed this month and left behind an amazing legacy for everyone he...
  2. lesliespontaneouspompa reblogged this from yourhaloisslipping
  3. justyouraveragefangirl02 reblogged this from juvyisinvalid and added:
    I think any story of a child with Progeria is inspiring and amazing. Especially Sams. Sam isn’t scared of the prospect...
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  5. reachforthemoonandgrabthestars reblogged this from livingin97
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    This is amazing, my prayers are with you beautiful
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